Community-based Palliative Care Delivery for Adult Patients with Advanced Illnesses and their Caregivers
Recently, PCORI issued a notice of upcoming funding announcement titled, “Community-based Palliative Care Delivery for Adult Patients with Advanced Illnesses and their Caregivers:” http://www.pcori.org/funding-opportunities/announcement/community-based-palliative-care-delivery-adult-patients-advanced. This is a unique and exciting opportunity for palliative care researchers like you, and for our ever-growing field!
For PCORI, the goal of the proposed targeted PFA is to generate evidence to:
- Support care planning over time that is consistent with the goals and preferences of patients with advanced illnesses and their caregivers, and
- Support the delivery of coordinated, community-based palliative care that effectively implements those care plans.
Further, PCORI’s multi-stakeholder meeting (82 attendees) identified advance care planning (ACP) and community-based models of palliative care as important priority areas for comparative effectiveness research (CER). PCORI’s Board of Governors Meeting slides specifically mentions the existence of several federally funded networks and consortia that are available for conducting large scale, multi-site palliative care trials. Your PCRC is one of these networks!
The PCRC does indeed have experience and expertise with multi-site research and the PCRC would be delighted to talk with you about the possibility of partnering with you on your proposed study.
There is no formal relationship between the PCRC and PCORI, nor any requirements to use the PCRC for this particular funding opportunity. However, as you know, meaningful comparative effectiveness trials require effective multi-site infrastructure and multi-site resources. So please know that the PCRC is ready and enthusiastic to connect with you about this funding mechanism.
- Offers a number of resources for designing and conducting multi-site research: http://palliativecareresearch.org/corescenters/, and
- Has 229 members: http://palliativecareresearch.org/members/roster at 93 organizations across the US: http://palliativecareresearch.org/members/interested-in-pcrc-membership/summary-of-pcrc-members/
If you are planning to apply to PCORI and would like to collaborate with the PCRC, please send a letter of intent (LOI) (also due September 14). Please note, this is an addition to PCORI’s LOI. The PCRC LOI form can be found here: https://pcrc.app.box.com/v/loi-0116. The LOI helps the PCRC Scientific Review understand and evaluate the science and feasibility of your project within PCRC infrastructure, which is independent of PCORI’s scientific review.
We hope many of you consider this exciting funding opportunity. You count on the PCRC for guidance and collaboration!
Presenter: Elaine Morrato, DrPH MPH is the Associate Dean for Public Health Practice at the Colorado School of Public Health. Her research focuses on accelerating the translation of drug warnings into clinical practice. She directs the Pragmatic Trials and Dissemination and Implementation Research program and the Innovation-Corps training program for commercialization in the Colorado Clinical & Translational Sciences Institute.
When: Wednesday, July 13th, 2016 – 11:00am-12:30pm Eastern Daylight Time
*Note this is a 90-minute webinar
Step 1: Click this link on your computer: https://webmeeting.ucsf.edu/orion/joinmeeting.do?ED=JmS_7WysH8ZD7BtTUODPnA==&Rnd=0.22234557366096264
Step 2: Connect to the audio portion of the meeting. Either:
- Let the system call your phone (you will receive prompts once you have clicked on the link above and joined the meeting)
- Call in directly, using this phone number: +1 415-514-1000; Access Code: 990 489 623IMPORTANT NOTE: You must have the WebEx Meeting plugin downloaded to your computer in order for WebEx to work. The first time you start or join a meeting, you will be prompted to download the plugin to your computer or you may choose to run WebEx as a temporary application. We strongly encourage you to test WebEx before the webinar. To download the plugin or to confirm that you’re able to successfully join, click here: http://www.webex.com/test-meeting.html
For the millions of Americans who work in or with the healthcare sector – including clinicians, clergy, social workers, caregivers, and support staff – providing high-quality care for people who are nearing the end of life is a matter of professional commitment and responsibility. ReachMD has partnered with the National Academy of Medicine, part of the National Academies of Sciences, Engineering, and Medicine, to broadcast a new series across the ReachMD network based on the report ‘Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life’. The report is from the Institute of Medicine (IOM), a division of the Academies.
The four topics in the series include:
- Improving Palliative Care Quality and Honoring Individual Preferences Near the End of Life, featuring Dr. James A. Tulsky
- Interdisciplinary Teamwork in Palliative Care, Successes and Challenges, featuring Dr. Jean S. Kutner
- Policy and Payment Systems for Care Near the End of Life, featuring Mr. Leonard D. Schaeffer
The ‘Dying in America’ podcast series on ReachMD can be found across the ReachMD distribution network, which includes ReachMD, iHeartRadio, Tunein, iTunes, and Stitcher.
Early career investigators would you like to incorporate the latest science in health disparities into your own research?
The National Institute on Minority Health and Health Disparities (NIMHD) will host the Health Disparities Research Institute from August 15, 2016, to August 19, 2016. The Institute aims to foster individual research projects of promising scientists and motivated research scholars with the overall goal to stimulate innovative research in the minority health and health disparities sciences. Please forward this message to anyone who may be interested in applying.
What the Health Disparities Research Institute Is: This program provides a unique opportunity for early career researchers, interested in addressing health disparities and minority health research, to learn about the latest science and receive guidance on their own research projects from leaders in the field.
Who Should Apply: Early career investigators, including postdoctoral researchers, research associates and assistant professors, engaged in health disparities and minority health research are encouraged to apply. We seek participants from diverse backgrounds within and outside of academia, such as from community-based and nonprofit organizations.
Cost: There is no cost, but admission is competitive and participants are required to attend all daily sessions. Participants are responsible for arranging their own transportation, room, and board. Limited scholarships will be available to cover travel expenses based on need. Applicants from diverse backgrounds, including underrepresented racial and ethnic groups, who require financial assistance are always encouraged to apply for NIH support.
How to Apply: The online application is now open on the NIMHD website: http://bit.ly/hdinstitute16.
The due date for submitting an application is 5:00pm local time on June 1, 2016.
Application Information: Selection will be based on the following criteria:
- Professional experience and educational achievements.
- A brief essay (no more than 250 words) addressing interest in the program and outlining objectives for participation in the program
- A one-page abstract with specific aims of a proposed research project
- One letter of recommendation providing evidence of potential success in minority health and health disparities research
Approximately 60 participants will be accepted and preference will be given to those who demonstrate high potential to incorporate training into their own research.
Program Information: The program will feature lectures, seminars, small group discussions, and sessions with scientific staff from across NIH Institutes and Centers. Lectures and seminars will include the following topics:
- Population science and health disparities
- Research design and measurement approaches
- Intervention science methods
- Healthcare disparities and outcomes research
- Community-based participatory research
Small group discussions will be tailored to the research interests of the participants. NIH staff will also consult on research strategies and methodologies specific to the participant’s project and how to develop the project into an R01, R21, or K award application.
For additional information, contact the course planning committee at [email protected].
What: PCRC New Member Orientation Webinar
When: Friday, June 10th, 2016, 2:00-3:00pm Eastern Daylight Time
Step 1: Click this link on your computer: https://webmeeting.ucsf.edu/orion/joinmeeting.do?ED=WePyIdX-ZWHzbY77zRq3kg==
Step 2: Connect to the audio portion of the meeting. Either:
· Let the system call your phone (you will receive prompts once you have clicked on the link above and joined the meeting)
· Call in directly, using this phone number: +1 415-514-1000; Access Code: 993 729 099
IMPORTANT NOTE: You must have the WebEx Meeting plugin downloaded to your computer in order for WebEx to work. The first time you start or join a meeting, you will be prompted to download the plugin to your computer or you may choose to run WebEx as a temporary application. We strongly encourage you to test WebEx before the webinar. To download the plugin or to confirm that you’re able to successfully join, click here: http://www.webex.com/test-meeting.html
The Investigator Development Center is organizing Special Interest Groups (SIGs) to link PCRC investigators who are interested in collaborating around palliative care research topics. The goal is to connect researchers with similar interests to create communities for collaborating and networking, problem-solving, and sharing resources. Sign up for the current SIGs here.
To express interest in the creation of a new SIG, PCRC members can click here to weigh in on topics.
There is an open call for applications to participate on the PCRC’s Steering Committee, Membership Committee, Face-to-Face Planning Task Force, and the newly formed Publication Committee. You can also apply to be an ad-hoc Scientific Review Committee or pilot grant reviewer.
Each of these PCRC committees/task forces will be seeking new representatives in 2016, so we look forward to receiving applications from all who are interested! (If you have previously submitted an application for one or more, there is no need to re-submit; we have your application on file.)
For details on PCRC committee opportunities and how to apply, please visit: http://palliativecareresearch.org/who/cfa-committee/
Vice President Biden’s recent announcement of a National Cancer Moonshot Initiative has brought renewed attention to the experiences of those living with cancer and their caregivers. Though many have touted this as a “cancer cure” initiative, we in the palliative care research community understand that the experience of cancer, independent of the outcome, is a life-changing event, and should also be an areas of focus for research. This requires additional investments in palliative care research, above the 1% funding from federal agencies.
The National Cancer Institute recently opened for public comment an online forum for stakeholders across research and lay communities to suggest “research ideas for consideration,” found here:
PCRC members, please consider suggesting your own research ideas. Hopefully, vigorous participation in this forum from our research communities will emphasize to decision makers that this research is needed, ideas for studies are plentiful, and a workforce of inspired researchers is available.