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PCRC De-identified Data Repository (DiDR) Studies

Search and browse available data in the PCRC DiDR

Title	Enrollment	Study Summary
Anticoagulation Therapy on Discharge to Hospice Care	1141
Barriers to Hospice and Palliative Care Utilization	287	Download
Choice Sets for Advance Directives	316
A Collaborative Palliative and Oncology Care Intervention to Improve Symptoms and Coping During Treatment for Head and Neck Cancer	20	Download
Comparing the Effectiveness of the Stanford Letter to the Traditional Advance Directive in Bone Marrow Transplant Recipients	126
Consumer Engagement to Increase Advance Care Planning	491
Culturally Sensitive End-Of-Life Care Intervention	22	Download
Examining the Utility of Patient Portals in the Setting of Serious Illness and End of Life	6680	Download
Family Experiences in ICU Transfers	34	Download
FOCIS	188
Goals of Care	604	Download
Hospice Bereavement Service Delivery to Family Members and Friends With Bereavement-Related Mental Health Symptoms	3561	Download
Interdisciplinary Models for Delivering High-Quality Palliative Care in the ICU]	217
Is death rattle a phenomenon that requires medical treatment?	71
Patient-Centered Disease Management for Heart Failure (PCDM)	392	Download
Patient-reported Distress in Adults with Myelodysplastic Syndromes (MDS)	124
Provider and Organizational Norms of Treatment for Seriously Ill Elders	153
Psychological Intervention for Caregivers of Patients with Malignant GIiomas	10	Download
QDACT-PC Feasibility	14
Rater Intensity Psychometrics of the Respiratory Distress Observation Scale Patient Data	136
RDOS Cut-point Substantiation Study	84
Reducing End-of-Life Symptoms with Touch (REST)	380	Download

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Acute Kidney Injury

Amyotrophic Lateral Sclerosis (ALS)

Bacterial Endocarditis

Bladder (including Urethral) Cancer

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Breast Cancer

Bronchiectasis

Cirrhosis (non-viral)

Colon, Rectal, or Anal cancer

Connective Tissue Disease

COPD (including emphysema and chronic bronchitis)

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End-Stage Renal Disease

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HIV/AIDS

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Leukemia (including MDS)

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Thyroid Cancer

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Ulcer Disease

Uterine, Cervical, or Vaginal Cancer

Valvular Heart Disease

Viral Hepatitis/Cirrhosis

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