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PCRC De-identified Data Repository (DiDR) Studies

Search and browse available data in the PCRC DiDR

Title	Enrollment	Study Summary
Anticoagulation Therapy on Discharge to Hospice Care	1141
Choice Sets for Advance Directives	316
Consumer Engagement to Increase Advance Care Planning	491
FOCIS	188
Hospice Bereavement Service Delivery to Family Members and Friends With Bereavement-Related Mental Health Symptoms	3561	Download
Is death rattle a phenomenon that requires medical treatment?	71
Patient-Centered Disease Management for Heart Failure (PCDM)	392	Download
Patient-reported Distress in Adults with Myelodysplastic Syndromes (MDS)	124
Provider and Organizational Norms of Treatment for Seriously Ill Elders	153
Rater Intensity Psychometrics of the Respiratory Distress Observation Scale Patient Data	136
RDOS Cut-point Substantiation Study	84
Reducing End-of-Life Symptoms with Touch (REST)	380	Download
Statin Discontinuation	381	Download
Surrogate Storytelling	32
Translation of a Lung Cancer Palliative Care Intervention for Clinical Practice	324	Download

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Acute Kidney Injury

Amyotrophic Lateral Sclerosis (ALS)

Bacterial Endocarditis

Bladder (including Urethral) Cancer

Brain Cancer

Breast Cancer

Bronchiectasis

Cirrhosis (non-viral)

Colon, Rectal, or Anal cancer

Connective Tissue Disease

COPD (including emphysema and chronic bronchitis)

Coronary artery Disease (including Myocardial Infarction)

Cystic Fibrosis

Dementia

Diabetes (uncomplicated)

Diabetes (with end organ damage)

End-Stage Renal Disease

Head and Neck Cancer

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Multiple Myeloma (including amyloidosis)

Multiple sclerosis

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Pulmonary Hypertension

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Restrictive Heart Disease

Severe debility

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Stroke (hemorrhagic)

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Thyroid Cancer

Traumatic Brain Injury (TBI)

Ulcer Disease

Uterine, Cervical, or Vaginal Cancer

Valvular Heart Disease

Viral Hepatitis/Cirrhosis

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