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PCRC De-identified Data Repository (DiDR) Studies

Search and browse available data in the PCRC DiDR

Title	Enrollment	Study Summary
Advance Care Planning for Parkinson’s Disease	60
Advanced Care Planning	51
Anticoagulation Therapy on Discharge to Hospice Care	1141
Barriers to Hospice and Palliative Care Utilization	287	Download
Choice Sets for Advance Directives	316
A Collaborative Palliative and Oncology Care Intervention to Improve Symptoms and Coping During Treatment for Head and Neck Cancer	20	Download
Comparing the Effectiveness of the Stanford Letter to the Traditional Advance Directive in Bone Marrow Transplant Recipients	126
Consumer Engagement to Increase Advance Care Planning	491
Culturally Sensitive End-Of-Life Care Intervention	22	Download
Examining the Utility of Patient Portals in the Setting of Serious Illness and End of Life	6680	Download
Family Experiences in ICU Transfers	34	Download
FOCIS	188
Goals of Care	604	Download
Hospice Bereavement Service Delivery to Family Members and Friends With Bereavement-Related Mental Health Symptoms	3561	Download
Interdisciplinary Models for Delivering High-Quality Palliative Care in the ICU]	217
Is death rattle a phenomenon that requires medical treatment?	71
Mindfulness-Based Multi-Symptom CBT for Advanced Cancer Patients	24	Download
Pancreatic Care Planning	10
Patient-Centered Disease Management for Heart Failure (PCDM)	392	Download
Patient-reported Distress in Adults with Myelodysplastic Syndromes (MDS)	124
Pilot Testing a Virtual Reality Protocol for Improving Pain and Pain-Related Distress in Patients with Advanced Stage Colorectal Cancer	20
Provider and Organizational Norms of Treatment for Seriously Ill Elders	153

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Acute Kidney Injury

Amyotrophic Lateral Sclerosis (ALS)

Bacterial Endocarditis

Bladder (including Urethral) Cancer

Brain Cancer

Breast Cancer

Bronchiectasis

Cirrhosis (non-viral)

Colon, Rectal, or Anal cancer

Connective Tissue Disease

COPD (including emphysema and chronic bronchitis)

Coronary artery Disease (including Myocardial Infarction)

Cystic Fibrosis

Dementia

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End-Stage Renal Disease

Head and Neck Cancer

Heart Failure

Hemi- or Para-plegia

HIV/AIDS

Ischemic colitis (including bowel perforation)

Leukemia (including MDS)

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Melanoma

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Multiple Myeloma (including amyloidosis)

Multiple sclerosis

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Parkinson’s Disease

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Pulmonary Hypertension

Renal Cancer

Restrictive Heart Disease

Severe debility

Severe GI bleed

Stroke (hemorrhagic)

Stroke (ischemic/embolic)

Thyroid Cancer

Traumatic Brain Injury (TBI)

Ulcer Disease

Uterine, Cervical, or Vaginal Cancer

Valvular Heart Disease

Viral Hepatitis/Cirrhosis

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