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PCRC De-identified Data Repository (DiDR) Studies
Search and browse available data in the PCRC DiDR
Title
Enrollment
Study Summary
Anticoagulation Therapy on Discharge to Hospice Care
1141
Barriers to Hospice and Palliative Care Utilization
287
Download
Choice Sets for Advance Directives
316
Consumer Engagement to Increase Advance Care Planning
491
Culturally Sensitive End-Of-Life Care Intervention
22
Download
Family Experiences in ICU Transfers
34
Download
FOCIS
188
Goals of Care
604
Download
Hospice Bereavement Service Delivery to Family Members and Friends With Bereavement-Related Mental Health Symptoms
3561
Download
Is death rattle a phenomenon that requires medical treatment?
71
Patient-Centered Disease Management for Heart Failure (PCDM)
392
Download
Patient-reported Distress in Adults with Myelodysplastic Syndromes (MDS)
124
Provider and Organizational Norms of Treatment for Seriously Ill Elders
153
Psychological Intervention for Caregivers of Patients with Malignant GIiomas
10
Download
Rater Intensity Psychometrics of the Respiratory Distress Observation Scale Patient Data
136
RDOS Cut-point Substantiation Study
84
Reducing End-of-Life Symptoms with Touch (REST)
380
Download
Refinement of a Prognostic Model for Patients with Metastatic Cancer
3913
Download
Statin Discontinuation
381
Download
Surrogate Storytelling
32
Testing PCforMe: a Web-Based Tool to Prepare Patients for Palliative Care
80
Download
The Impact of Age on Early Palliative Care for Patients with Advanced Cancer
350
Download
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