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PCRC De-identified Data Repository (DiDR) Studies

Search and browse available data in the PCRC DiDR

Title	Enrollment	Study Summary
Anticoagulation Therapy on Discharge to Hospice Care	1141
Barriers to Hospice and Palliative Care Utilization	287	Download
Choice Sets for Advance Directives	316
Consumer Engagement to Increase Advance Care Planning	491
Culturally Sensitive End-Of-Life Care Intervention	22	Download
Family Experiences in ICU Transfers	34	Download
FOCIS	188
Goals of Care	604	Download
Hospice Bereavement Service Delivery to Family Members and Friends With Bereavement-Related Mental Health Symptoms	3561	Download
Is death rattle a phenomenon that requires medical treatment?	71
Patient-Centered Disease Management for Heart Failure (PCDM)	392	Download
Patient-reported Distress in Adults with Myelodysplastic Syndromes (MDS)	124
Provider and Organizational Norms of Treatment for Seriously Ill Elders	153
Psychological Intervention for Caregivers of Patients with Malignant GIiomas	10	Download
Rater Intensity Psychometrics of the Respiratory Distress Observation Scale Patient Data	136
RDOS Cut-point Substantiation Study	84
Reducing End-of-Life Symptoms with Touch (REST)	380	Download
Refinement of a Prognostic Model for Patients with Metastatic Cancer	3913	Download
Statin Discontinuation	381	Download
Surrogate Storytelling	32
Testing PCforMe: a Web-Based Tool to Prepare Patients for Palliative Care	80	Download
The Impact of Age on Early Palliative Care for Patients with Advanced Cancer	350	Download

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Acute Kidney Injury

Amyotrophic Lateral Sclerosis (ALS)

Bacterial Endocarditis

Bladder (including Urethral) Cancer

Brain Cancer

Breast Cancer

Bronchiectasis

Cirrhosis (non-viral)

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COPD (including emphysema and chronic bronchitis)

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Restrictive Heart Disease

Severe debility

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Thyroid Cancer

Traumatic Brain Injury (TBI)

Ulcer Disease

Uterine, Cervical, or Vaginal Cancer

Valvular Heart Disease

Viral Hepatitis/Cirrhosis

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