Data, Informatics, and Statistics Core (DISC)

PCRC investigators are entitled to three free hours of consulting on their PCRC-supported grant applications and/or funded research.

Statistical Consulting

The DISC currently has two biostatisticians available to consult on PCRC-supported grant applications. The team has expertise in methods for handling missing data, correlated data (i.e., data from multiple sites and/or longitudinal data), clinical trial design, sample size estimates, and statistical methods for analyzing large observational data sets. Please contact Kathryn Colborn for questions related to statistical consulting.

Qualitative and Mixed-Methods Consulting

The DISC provides consulting for qualitative, mixed-, and multi-methods data analysis. Please contact Salimah Meghani for questions related to qualitative and mixed-methods consulting.

The PCRC DISC hosts a de-identified data repository (DiDR) of PCRC-supported and non-PCRC palliative care research study data. These data and related study materials can be accessed by requesting approval from the PCRC secondary data analysis committee. Please contact us for questions related to the DiDR.

To share data with the PCRC DiDR, follow the button below and fill out the deposit request form to receive a link to submit your quantitative data. 

PCRC has partnered with Qualitative Data Repository at the Maxwell School of Citizenship and Public Affairs at Syracuse University to host the first PCRC qualitative data repository in EOLPC. 

The PCRC offers guidelines to investigators on Standardized Data Elements (SDEs) that should be collected in any palliative-care research study. These SDEs allow us to provide key information on the PCRC study population and data available in the DiDR. Please contact us for questions related to the PCRC Standardized Data Elements.

The DISC data manager is available to consult or develop databases for PCRC-supported research studies. The primary data storage system DISC recommends using in single or multi-site studies is REDCap. Please contact us for questions related to Database Development.

EQUATOR reporting guidelines for a wide range of study types.

This link, provided by the Equator Network, contains a comprehensive searchable database of reporting guidelines for several quantitative and qualitative study designs and also links to other resources relevant to enhancing quality and transparency of research reporting. We recommend that investigators review the appropriate guidelines prior to starting their study to ensure that they have collected all the necessary data.