De-identified Data Repository (DiDR)
The PCRC DISC hosts a de-identified data repository (DiDR) of PCRC-supported and non-PCRC palliative care research study data. These data and related study materials can be accessed by requesting approval from the PCRC secondary data analysis committee. Please contact us for questions related to the DiDR.
To share data with the PCRC DiDR, follow the button below and fill out the deposit request form to receive a link to submit your quantitative data.
Qualitative Data Repository (QDR)
PCRC has partnered with Qualitative Data Repository at the Maxwell School of Citizenship and Public Affairs at Syracuse University to host the first PCRC qualitative data repository in EOLPC.
Standardized Data Elements
The PCRC offers guidelines to investigators on Standardized Data Elements (SDEs) that should be collected in any palliative-care research study. These SDEs allow us to provide key information on the PCRC study population and data available in the DiDR. Please contact us for questions related to the PCRC Standardized Data Elements.
Additional Resources
EQUATOR reporting guidelines for a wide range of study types. This link, provided by the Equator Network, contains a comprehensive searchable database of reporting guidelines for several quantitative and qualitative study designs and also links to other resources relevant to enhancing quality and transparency of research reporting. We recommend that investigators review the appropriate guidelines prior to starting their study to ensure that they have collected all the necessary data.