Measurement Core

Core Leadership:

Contact Antonia Bennett or Laura Hanson for a core consultation.

Roles and responsibilities of the Measurement Core:

• Assist with identifying appropriate survey instruments, especially those for patients and clinicians.

• Assist with planning the logistics of survey data collection, including the mode and method of data capture (self or interviewer administered; by paper, tablet, or web; in clinic or at home), the frequency of assessments and reminders, informational handouts, and training of site staff and survey respondents.

• Review and provide input on portions of protocol text, consent forms, and IRB applications regarding survey data collection, as appropriate.

• Assist with identifying the correct scoring algorithm for survey instruments and provide this to the Data & Statistics Core or to the Study Investigator’s statistician.

Core Resources:

• Palliative Care Measurement Tool Library
• Systematic Reviews of Instruments Relevant to Palliative Care
• How to implement Patient Reported Outcomes (PROs) in your research studies
• Useful references and resources when designing studies and conducting research that includes PROs