Roles and responsibilities of the Measurement Core:
Assist with identifying appropriate survey instruments, especially those for patients and clinicians.
Assist with planning the logistics of survey data collection, including the mode and method of data capture (self or interviewer administered; by paper, tablet, or web; in clinic or at home), the frequency of assessments and reminders, informational handouts, and training of site staff and survey respondents.
Review and provide input on portions of protocol text, consent forms, and IRB applications regarding survey data collection, as appropriate.
Assist with identifying the correct scoring algorithm for survey instruments and provide this to the Data & Statistics Core or to the Study Investigator’s statistician.