The following references and resources may be useful in the design and conduct of research studies that include patient-reported outcome (PRO) measures or caregiver assessments:
If you would like to request access to the PCRC's Measurement Tool Library, please click below.
NIH Toolbox for Neurologic and Behavioral Research: http://www.nihtoolbox.org/Pages/default.aspx |
NIH Patient-Reported Outcomes Measurement Information System (PROMIS): http://www.nihpromis.org/ |
NCI Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE): http://healthcaredelivery.cancer.gov/pro-ctcae/ |
Systematic Reviews of Instruments Relevant to Palliative Care, compiled by the PCRC |
AHRQ Evidence Review: Assessment Tools for Palliative Care |
Patient-Reported Outcomes Core (PRO-Core). University of North Carolina. |
Fairclough DL. Design and Analysis of Quality of Life Studies in Clinical Trials, 2nd edition. New York: Chapman & Hall/CRC Interdisciplinary Statistics Series, 2010. |
Cappelleri JC, Zou KH, Bushmakin AG, et al. Patient-reported outcomes: measurement, implementation and interpretation. New York: Chapman & Hall/CRC Biostatistics Series, 2014. |