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Publications
PCRC De-identified Data Repository (DiDR) Studies
Search and browse available data in the PCRC DiDR
Title
Enrollment
Study Summary
Advance Care Planning for Parkinson’s Disease
60
Advanced Care Planning
51
Anticoagulation Therapy on Discharge to Hospice Care
1141
Barriers to Hospice and Palliative Care Utilization
287
Download
Choice Sets for Advance Directives
316
A Collaborative Palliative and Oncology Care Intervention to Improve Symptoms and Coping During Treatment for Head and Neck Cancer
20
Download
Comparing the Effectiveness of the Stanford Letter to the Traditional Advance Directive in Bone Marrow Transplant Recipients
126
Consumer Engagement to Increase Advance Care Planning
491
Culturally Sensitive End-Of-Life Care Intervention
22
Download
Examining the Utility of Patient Portals in the Setting of Serious Illness and End of Life
6680
Download
Family Experiences in ICU Transfers
34
Download
FOCIS
188
Goals of Care
604
Download
Hospice Bereavement Service Delivery to Family Members and Friends With Bereavement-Related Mental Health Symptoms
3561
Download
Interdisciplinary Models for Delivering High-Quality Palliative Care in the ICU]
217
Is death rattle a phenomenon that requires medical treatment?
71
Mindfulness-Based Multi-Symptom CBT for Advanced Cancer Patients
24
Download
Pancreatic Care Planning
10
Patient-Centered Disease Management for Heart Failure (PCDM)
392
Download
Patient-reported Distress in Adults with Myelodysplastic Syndromes (MDS)
124
Pilot Testing a Virtual Reality Protocol for Improving Pain and Pain-Related Distress in Patients with Advanced Stage Colorectal Cancer
20
Provider and Organizational Norms of Treatment for Seriously Ill Elders
153
Pagination
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Condition Studied
Acute Kidney Injury
Amyotrophic Lateral Sclerosis (ALS)
Bacterial Endocarditis
Bladder (including Urethral) Cancer
Brain Cancer
Breast Cancer
Bronchiectasis
Cirrhosis (non-viral)
Colon, Rectal, or Anal cancer
Connective Tissue Disease
COPD (including emphysema and chronic bronchitis)
Coronary artery Disease (including Myocardial Infarction)
Cystic Fibrosis
Dementia
Diabetes (uncomplicated)
Diabetes (with end organ damage)
End-Stage Renal Disease
Head and Neck Cancer
Heart Failure
Hemi- or Para-plegia
HIV/AIDS
Ischemic colitis (including bowel perforation)
Leukemia (including MDS)
Lung (non-small cell)
Lung (small cell)
Lymphoma
Melanoma
Multiple contributing Conditions
Multiple Myeloma (including amyloidosis)
Multiple sclerosis
Osteomyelitis
Other Cancer
Other Cardiovascular Disease
Other GI Disease
Other Infectious Disease
Other Neurological Disease
Other Pulmonary Disease
Other Renal Disease
Other upper GI (liver, gastric esophageal, carcinoid, etc.) Cancer
Ovarian/peritoneal Cancer
Pancreatic Cancer
Parkinson’s Disease
Peripheral Vascular Disease
Pneumonia
Prostate Cancer
Pulmonary Fibrosis, ILD, and other restrictive lung disease
Pulmonary Hypertension
Renal Cancer
Restrictive Heart Disease
Severe debility
Severe GI bleed
Stroke (hemorrhagic)
Stroke (ischemic/embolic)
Thyroid Cancer
Traumatic Brain Injury (TBI)
Ulcer Disease
Uterine, Cervical, or Vaginal Cancer
Valvular Heart Disease
Viral Hepatitis/Cirrhosis
Participant Age
Adult
Geriatric
Pediatric
Participant Race
< 25% Non-Hispanic White
≥ 25% Non-Hispanic White
Participant Sex
Both male and female participants
Only female participants
Only male participants
Therapeutic Area
Cancers
Cardiovascular
Gastrointestinal
Hepatic
Infectious
Multi-Systemic
Neurologic/Neurodegenerative
Pulmonary
Renal
Total Enrollment
< 50
50 – 99
100 – 199
200 – 299
300 – 399
400 – 499
≥ 500
Data Type
Mixed Methods
Qualitative
Quantitative
Number of Study Sites
1
2 – 4
5 – 10
11 - 15
> 15
Participant Type
Caregiver
Health Care Provider
Patient
Study Design
Intervention
Observational – cross-sectional
Observational – longitudinal
Study Setting
Assisted Living
Clinic-Ambulatory
Domiciliary-Boarding Home
Home
Hospital
Nursing Home
Other Setting
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